1.16.2013

doctors, doctors and more doctors

To say that this year has already been busy for us would be understatement.  At 16 days into the year, we've had 7 doctor appointments and it doesn't look like things will be slowing down any time soon.  While I hope this isn't an indication of what's to come this year, I am thankful to live in a time where my babies can get the help they need.

We started the year off with an appointment at the high risk clinic.  I've spoken about this before.  The boys see a developmental pediatrician that is affiliated with the hospital in which they spent their first 4 months of life.  The doctor asks us a series of questions about the boys health and development since our last visit and then she runs a series of tests to see for herself what they can "do".  It's a 2-3 hour appointment and very draining on both parents and babies.  Both boys scored at around a 10 month level for both fine motor skills and speech.  (To us, as parents who see our children every day, this is highly inaccurate.  Both boys were cranky because it was during their nap time and didn't want to "perform".  We see daily that Aiden is a little more advanced in fine motor than Ryan and vice versa for speech.  So we took this with a grain of salt).  They don't score for gross motor but we were told that Aiden is right on track.  He is pulling up to stand, cruising and walking with a walking toy.  Ryan, on the other hand, is significantly delayed and they recommended increased services for him.  We are in the process of requesting PT, OT, Speech/Feeding and a Home Teacher for 3x/week.  Hopefully Ryan will be approved and he can get back on track.  Another thing of importance:  I've mentioned his lack of use in his right arm.  Well they said his right arm is at the level of a 3 month old.  While that news sort of weighed heavy on me, it is something we live with every day and it is something we already knew.  I guess it's just hard to see on paper.  At the end of the day though, the boys are making progress.  And progress is all I ask for.

The same day we went to Aiden's hearing clinic to have his hearing aids adjusted (since his last test showed that his hearing improved) and Ryan's opthamologist.  We were instructed to patch his right eye for 2 hours a day until our next appointment in April.  The idea is to stregthen his weak eye, so we patch the "better" eye.  He's tolerating it well and we usually patch as soon as we wake up to get it out of the way.

Next up that day was a trip to their pediatrician for their monthly RSV shot.  We will be going every month until April.  Poor babies cry bloody murder.  What's worse is that it is two shots (one in each leg) so we can't pick them up immediately to soothe them.  Instead they cry their little eyes out all the while thinking, "Momma/Papa, why the hell aren't you hugging me yet?!"  And then they're hit with the second shot.  At this point there is no sound coming out of their mouths, but they're still crying.  Ugh, breaks my momma heart every time.  Poor little guys.

The next day I took Aiden to see a new ENT.  His current ENT is fabulous and we will continue to use him.  However, Aiden is having his cleft palate repaired in February.  During the procedure an ENT will be placing a new set of tubes in his ears because the left one has fallen out.  We're opting to have this done during his cleft palate repair in order avoid sedating him more than necessary.  Since our oral surgeon is out of NYU, that's where the surgery will take place, so we had to find an ENT to place the tubes who works out of NYU (our current one works out of LIJ).  Logistics, I tell you.  I should embark on a new career in HR.  Anyway, the appointment went smoothly.  The doctor was super cool.  Gave me him email address and instructed me to email him to confirm the surgery date.  Easy peasy.

Early this week we had our 15 month well baby visit.  Everything went swimmingly.  The boys are growing nicely according to their own curve, and even though they're still under the 3rd percentile for their actual age we aren't concerned because they fall between the 25th and 50th percentiles for their adjusted ages.  We got vaccines and the doctor got a bunch of dirty looks and crocodile tears in return.  Oh yea, and we got the okay to transition to whole cow's milk.  Halle-frieken-lujah.  That means that instead of spending roughly $17 a can on formula that lasts us a day and a half, we will be spending anywhere between $4-6 a half gallon on milk that will last us about a day or so?  Not quite sure yet. 

Whew. 

Today, we took Aiden back to the hearing clinic because we had a feeling his left hearing aid was set too high.  He kept messing with only his left aid, and so we thought he just needed an adjustment.  Needless to say the whole trip out east at 6pm on a weeknight was a waste.  They wouldn't adjust his hearing aid because they said it's already set really low and that he's probably just being a toddler that won't leave his hearing aids alone.  Hmm.  We go back in March for another hearing test and another hearing aid check. 

So that's what's been going on with us lately.  Tomorrow is another appointment, this time for Ryan.  It's a big one but I'll fill everyone in after.  So stay tuned.  And please send us any positive thoughts you can spare.  As always, thank you for reading and thank you for praying.  We are so blessed to have our boys and so lucky to have so much support. 

Sleep tight. 


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