9.25.2013

aware

September is Hydrocephalus Awareness month.  I guess I almost dropped the ball on this one, but since it's still September you have to give me a pass on this one.  It's so fitting that A&R were born in September, isn't it?  Last year I guest blogged in honor of Hydrocephalus Awareness.  You can read that post here

I'd also like to post a few quick facts about this condition that has so greatly impacted our lives.  

Hydrocephalus comes in many forms.  It can be congenital or acquired.  It can be found in babies and adults.  As a matter of fact, it is often misdiagnosed as dementia or Alzheimer's. 

Shunts are not a cure.  They are just a way to control the flow of cerebrospinal fluid. 

50% of shunts fail within the first two years after placement.  Aiden is on his second shunt.  Ryan is on his third.  

It is brain surgery.  The placement of a shunt is a high risk surgery.  But it is something that is necessary for the survival of those who are affected by Hydrocephalus.

This website is a great resource for anyone who wants to know more about Hydrocephalus.  

Again, and as always, that you for supporting us, following our story, and letting us know you're there. 

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