9.22.2014

THREE

This week A&R turn 3.

That sentence can stand by itself.  Those few words mean so much to me that I can't even wrap my head around it.  For one, I can't even fathom the fact that I've been a mom for three years.  Parenthood is so surreal because one minute you're this young adult navigating your independence, and the next minute you have a little human or two (or three!) relying on you for everything.  And then the next thing you know, three years have passed, and your little humans aren't so little anymore and you have so much love and pride in your heart that you feel like you're about to burst every second of the day.  

We had a hard summer, y'all.  Fun, but hard.  Between getting the boys into preschool and Ryan's seizures and Aiden's chronic cough/vomiting stuff there were moments when I felt like it was just all too much.  There were more times than I want to admit that I felt sorry for myself, for my family.  But here we are on the cusp of autumn, a time that will always be bittersweet for me, and things have finally settled.  And when I take a step back and absorb what's going on around me, I can safely say that it all worked out.  Or is on its way to working out.  

Ryan had a 24 hour EEG this weekend and the results were very promising.  They didn't find any brain activity indicative of seizures.  This doesn't mean he won't ever have a seizure again, but at this point in time he does not need preventative medication.  So we kind of just sit back and wait and hope for the best.  

Aiden has had a couple visits to the pulmonologist to try and figure out where his issues are coming from and he is currently being treated with asthma and reflux medication.  His vomiting stopped and his cough did go away so this game plan seems promising.  Although in the last few days his cough has flared up again.  At this point we are waiting to see if maybe he is just sick (pre-school germies are brutal!).  Hopefully the cough goes away within the next few days.  

The boys are a handful.  They don't nap at pre-school and by the time they get home they are super wound up and all they do is wrestle each other.  We've had to move bedtime up earlier by an hour, but I'm not complaining.  

At almost three years old Aiden is a big boy who is super obsessed with everything super hero.  He walks around telling everyone he's "running like Spiderman" and hulk-smashing all his toys.  He is still obsessed with anything and everything Thomas. 

Ryan has made so much progress in his gross motor skills lately that I can't help but get excited for his future.  He is pulling up to stand and cruising.  And just this morning he walked while only holding of Seamus' hands (he usually needs both hands for balance).   He tries to climb on the couch and dive off of it.  He seriously has no fear.  While this gives me a heart attack almost daily, it will only help him to be more independent in the future.  

We have a busy week planned with a birthday dinner & movie, and then we're having a party to celebrate with all our family & friends who love our boys as much as we do.  With all the craziness that our lives recently entail, I can't help but stop and remember that life is so much easier today than it was three years ago.  And for that I will always be thankful.  

Happy (early) birthday boys.  You sure do make your momma proud!

 



9.09.2014

aware

September is Hydrocephalus Awareness month.  

September is also Aiden & Ryan's birthday month.  

In honor of our boys and this disorder that has affected our lives more than we could ever imagine, we will be walking in this year's Hydrocephalus Association Walk to be held on Sunday, Sept. 21, 2014.  It will take place at Belmont Lake State Park.  If you'd like to walk with us, just reach out and we can discuss details privately.

We won't be actively fundraising for this walk since so many of our dear friends and family donate each year to our March of Dimes walk.  However, we will be contributing to this cause as a family, and of course if  you feel an urge to donate, please do so by visiting this link.  I actually linked up to Aiden & Ryan's neurosurgeon's donation page.  Dr. Mittler is so important to our family and to other families like ours.  He is actually this year's honorary chair for the walk.  

 

 

9.03.2014

first of many

I said it on IG this morning, but I'll say it again.  Dude.  My kids are grown.  

This morning, Aiden & Ryan woke up, got dressed, ate breakfast, and we dropped them off at their first day of real, official pre-school.  It was such a fun morning.  One that I won't forget anytime soon.  The boys were perfectly behaved and super excited.  They even posed for a quick photo shoot on our front stoop.  It's as if the universe was telling us that they're going to be a-ok.  


Since the boys turn 3 (!!!) in a few weeks, they have officially aged out of Early Intervention, which is how, up until this point, they received all their therapy.  In order to continue therapy, which they still need, we applied to the CPSE program which is a preschool program for kids with special needs.  This way, they attend preschool five days a week, and all their therapy is condensed into the time they are there.  And on top of that, they get the advantage of learning social skills in a classroom setting.  Anyone who knows Aiden & Ryan, knows that they are little social butterflies.  They love people and they love to interact with their peers, so this is something that we've been looking forward to for a while.  Previously, they attended some therapy in a center-based program, but that was only a few hours a week.  This is a huge deal for us because this is real school.  And this is where they learn to be big boys with no naps.  Haha.  

In all seriousness though, the school they are attending is an amazing place with tons of equipment for kids like Ryan who don't walk.  They have gait trainers and standers available for all who need it.  And they have a huge gym in the basement used for PT and OT.  This is going to be a great thing for him, and Aiden too.  

I guess it's safe to say that summer is officially over.  Although I love the summer, I am certainly not that sad to see it go.  This is why I love living in NY.  Four seasons.  

Here are some of our most recent (and last) summer adventures, since I know I've been neglecting this space lately:


Last visit to the beach 


Fun at the petting zoo with grandma & grandpa

 

Sunday swimming





Birthday party fun


Meeting friends at 7-11


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